Showing posts with label Fancy Hospital. Show all posts
Showing posts with label Fancy Hospital. Show all posts

Wednesday, February 23, 2011

Man speaks for woman


O O O this should not bother me, but after all I'm the Bitch, and so many things can bother me that wouldn't bother a non-bitchy person. There's a woman who was diagnosed with breast cancer at Sloan-Kettering, just one of 200,000 women who will hear that the test was positive this year, and the noteworthy thing about her is that she's the Wife of a Doctor. A Doctor at Sloan-Kettering, and ain't that ironic or crazy or what-have-you, and since this is the age of irony, her husband gets to write about the experience in the New York Times. Am I jealous? Yes. Is that what's fueling my ire? Yes. No. Am I annoyed that he writes in an ungainly fashion and strains when he makes comparisons and isn't very interesting? Yes. Am I jealous? O, we covered that. Sort of. It's in the New York Times blog, not print, and since cyberspace is everywhere and nowhere, in a way you could say that it is not in the New York Times, or you could say it is there and everyplace else in the known world. But even at the blog, aren't there editors? Must not be, otherwise we wouldn't have such sentences as: The late nights along the Seine were as dark and dreary as the sunshine was bright that Wednesday morning on the Upper East Side of Manhattan.

The author is a doctor at Sloan-Kettering. What kind of cancer doctor? No one says. He admits that the white coat has been his protection against involvement and emotion. But anyone who's ever visited a hospital could tell you that. He also has pull, not surprisingly. He tells us that they got an appointment with a friend who's a breast surgeon: When I told him Ruth had felt a lump, he had made room to see us right away.

Which is nice. And I'm sure they have insurance, which is good because I doubt that professional courtesy would pay for all her subsequent treatments. Which is good for them, especially since they seem pretty young and it appears from this first installment that the cancer has spread to her lymph nodes. (Though you've read here that removing cancerous lymph nodes may not be required, after all.)

Of course, a more erudite decision on the part of the Times would have been to tap (virtually) the shoulder of the Cancer Bitch and offer her the blog spot. She could write: When the Cancer Bitch has Blood Cancer, a comedy of manners that has not yet ended. But the tap was not received, no messages were left. And a more relevant and important and serious decision would have been to get an uninsured woman to write about her breast cancer. Or, second best, the husband of said woman. Or daughter. Finding such a person would be easy--it is said in these parts that a scoffing full professor (the kind who hires adjuncts) once said he could spit outside the window of his office downtown and spray any number of PhDs, the point being that those with doctorates in English should be grateful, o so grateful, hat in hand and bowing and scraping, if and when they were offered a couple thousand dollars for teaching a course as an adjunct. So too, unapocryphally, you could walk to to the county hospital here, named for a politician, John Stroger, who spent his last days, comatose, in a private hospital (Fancy Hospital, in fact), and find hosts and hosts of people without health insurance. Interestingly, ABC News told us: Stroger lost a brother who was turned away from a segregated hospital in the South, and the availability of quality healthcare became his pet issue. He struggled for decades -- sometimes alone -- to make sure the Cook County Hospital remained open. There was a libertarian Republican named Tony Peraica who ran against Todd Stroger, son of John, for Cook County Board president, and I didn't like Peraica's politics at all, but I had to appreciate one commercial in which he said he would improve Cook County Hospital so that it would be good enough for John Stroger to go to. Peraica lost and Stroger died and Ariel Sharon remains cocooned in his own coma, and I think no one in Israel has the chutzpah to pull the plug on him. The photo above right is of a sculpture of Sharon by artist Noam Berlavsky.

The transformation implied in the blog, I think, is that a doctor regains his vulnerability and dare we say humanity, not to mention humility, when he is the spouse of a patient, and not a Doctor draped in sanitary whites. This is a tricky concept, because we writers would tell him that the story is his--but if he makes the story too much his own, he will seem like a cad because it's his wife who was stricken. The best thing for him, in order to remain a sympathetic narrator, is to contract a serious disease himself. But such things take time.
READ MORE - Man speaks for woman

Sunday, October 4, 2009

Please vote.

Dear Cancer Bitch readers,
I will relate a scenario to you and I'd like you to vote on my response.

Today I went to a town hall sponsored by Fancy Hospital. My oncologists (past and present) were there, as well as my surgeon, and they all spoke and the audience asked questions.
I went to the mic and asked two:
1. For chemo, I took Adriamycin and Taxol, but not Cytoxan, which usually goes with them, because of the fear of blood clots. Is there any research on the effect of using just Adriamycin and Taxol?
2. What is the research about drinking milk with Bovine Growth Hormones?

I'm going to 2. first. The only person with a clear answer was the nutritionist on the panel, and she said she recommends that you avoid milk with BGH. My surgeon said that organic milk is expensive.

Now for 1. My erstwhile oncologist said that he doesn't know why someone wouldn't prescribe Cytoxan, but he thought that a chemo regime without it would probably be effective. (I wanted to ask, Then why do you include Cytoxan, if you can do without it?) So here's the question. I really wanted to say, You prescribed the chemo regime without Cytoxan. (Because it's true.) But I didn't say that.
Should I have? Please vote in the Comments area. I have a blood disease that gives me, in essence, "thick blood," which makes me more likely than the average person to get a blood clot.
READ MORE - Please vote.

Sunday, November 2, 2008

Town Hall



Fancy Hospital had its annual Town Hall meeting last week on breast cancer. Meaning, anyone could come and ask questions of a panel of experts: my erstwhile oncologist, my current oncologist, my erstwhile and very nice radiologist, a patient advocate (who lives in Des Moines) and a oncologist-plastic surgeon. I learned a few things, some of them unsettling. That estrogen-positive cancer (such as mine) is easier to treat than other kinds, but it also has a greater chance than other cancers of coming back after five years. How did I miss hearing that before? That triple-negative breast cancer is more common in African-American women than in women of other races, and that it's more aggressive and more likely to recur than many other other kinds of breast cancers. That according to one trial, five years of tamoxifen is better than 10 because breast cancer cells can learn to grow with the tamoxifen.

A man asked about Dr. Susan Love's new research effort. My old onco pooh-poohed Love, calling her an "entrepreneur," and said he was "not sure what she's doing." My current onco said that Love was encouraging patients to get in clinical trials to help the next generation. "What she's doing is great," she said. My onco also said that bone scans and CT scans and tumor markers aren't helpful in finding metastasis. It makes no difference, she said, whether you find out now or three to six months from now that the cancer has spread.

One woman was dressed in orange and spoke with an accent, maybe Eastern European. She had sleek short hair that may have been, now that I think about it, a wig. She asked about extra testing when a person is in remission. Her mammograms didn't show anything but "now I find out ... I don't have much time."

But the most shocking thing I heard was this, at the beginning: My former oncologist said that he'd gotten e-mails from some patients, asking him if there was going to be anything new at the Town Hall this year. What? He gave his e-mail address to patients? And he answered them? Unbelievable.
READ MORE - Town Hall

Monday, July 30, 2007

I Hate Fancy Hospital

It is 11:30 and I should be on my way to my last chemo appointment, along with my friend S who flew in from San Francisco for escort duty, but Fancy does not have me on the schedule. In fact, I am not on the schedule until a month hence. I called this morning to see if I needed to be there at noon, my appointment time, or later, because I often wait and wait in the huge and distressing cancer ward waiting area. I also called because I remembered I didn't get a printout of this appointment, though it was understood I was coming in today at noon. Or I thought it was understood. After seven sessions on Mondays at noon (one on a Tuesday because of a holiday), and being told that Taxol is administered every two weeks, I thought it was obvious that I should be seen today at noon. But my nurse is on vacation, and I think her backup is on vacation, and given Fancy Hospital's tendency to overbook (worse than the airlines? I can't decide) I should not assume anything. But I did. I am very very very upset.

My voice cracks when I talk on the phone to the receptionists and chemo administrative director and the nurse who called me back after she was (allegedly) paged twice in 45 minutes. And so now it is 11:52 and I have been called back and told I have my appointment at 1. I can't tell you how momentous the last day of chemo is. It is, well, the last day of chemo. The end of the beginning. The end of feeling you are blasting the cancer away and now you are left up to your own devices and tamoxifen. P said her father became angry when his chemo ended and I understand why.
READ MORE - I Hate Fancy Hospital